April 10, 2013

Forgotten in Plain Sight {Epilepsy}

We give medication to our son twice daily, knowing it prevents seizures.  But sometimes it just becomes part of Who We Are and What We Do.  It's life.  It's routine.  Its significance is sometimes forgotten among "more important" things, even if we still remember to give the medication.
For more than two full years Brother took this medication and we had no idea if he even needed it.  (Normally, one seizure is not enough to warrant meds, but his seizure was severe.)  He had seized for over three hours (with medical intervention), which is called status epilepticus. He was just days away from his first birthday, which he spent in the hospital.  His neurologist placed him on medication for more than two years.  During that time we never saw another seizure, and his EEG's showed no seizure activity.  We didn't know if the medicine was working or if he didn't need it.

Brother was eventually taken off medicine.  He was seizure-free.  We were grateful.

Then, three years and a couple of days after his first seizure...he had another seizure.  It was totally different in how it looked. No convulsions with the body stiffening and relaxing (typically what people think of as seizures).

Brother had been laying on the floor playing and listening to music.  I was in the next room when I heard a strange noise.  Brother was vigorously rubbing the carpet.  Really, really fast.  His eyes were WAY off to the side.  He couldn't look at me or stop rubbing.  He was non-responsive, though certainly awake.

I didn't panic.  But I also didn't do what I should have done...and knew to do.  I did not call 911.  I did not look at the clock.  I did not remember to notice which hand was rubbing.  I did not take note which way his eyes were facing.

Thankfully, it was a short seizure lasting a few minutes.  It only took him a couple hours to recover.  I was once told that a seizure, even a short one, is like running a marathon: exhausting!

Brother returned to his medication.  After his seizure, I made sure to inform and educate his preschool and church workers.  We now know he needs the medication.  His last EEG even showed seizure activity within the brain (though he was not actually seizing).  Since then, epilepsy is rarely thought of or discussed in our home.  He is, overall, healthy, and it is easily forgotten.

Isn't God like that?  How many of us depend upon God during crisis and thank Him after the crisis for bringing us through, but when it comes to everyday life, we make Him the least of our priorities, even if our words say otherwise.  Instead of living our lives for God and letting Him be our ALL, we "let" Him into our lives when it's convenient or He is needed.  We give Him time when we can instead of letting our life be His.

Many of us, myself included, seek God most when we are desperate.
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We seek God through prayer and Bible reading.  But shouldn't our faith become part of Who We Are and What We Do? God should be life...MY ALL.  He should be routine (though never mundane).

For myself I hope that I will...never allow God to become less than a priority...not give just a few token minutes of Bible reading and prayer (though some is better than none)...let His significance not be forgotten in the busyness of life...not to take a backseat to babies, teenagers, my spouse, or even ministries.

~ Annette {This Simple Mom}

5 comments:

  1. Well said Annette. A good reminder for us all.

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  2. Thanks for writing this, it really is how we treat God at times, we're aware he's there, but don't do a thing about it. I knew I had this sitting in my reader all day for a reason.

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  3. Beautifully said and vitally true!
    Loving that picture of Brother - and so thankful that the meds help him.

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  4. Beautifully said and vitally true!
    Loving that picture of Brother - and so thankful the meds help him.

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  5. Amen. There's really nothing more that I can say to that.

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